Living with Duchenne Muscular Dystrophy

It all started with a little boy named Joseph and a really crummy diagnosis. A diagnosis that is brutal and surreal and so painfully real all at the same time. It was a seemingly normal winter day ten years ago when a neurologist, who we’d met just moments before, told us that Joseph had Duchenne muscular dystrophy. The doctor explained that there was no treatment or cure. Duchenne, he continued, is a progressive, degenerative muscle wasting disease that would steal Joseph’s ability to walk, to sit up, to use his arms. Then it would attack his heart and lungs.