Quite simply, when a child is diagnosed with Duchenne, a family’s life is divided into “before” and “after”.  One day, you’re just living your life, trying to figure out what to make for dinner, how to get that super important project done at work, and wondering what your kids will be when they grow up.  And then Duchenne comes in.

Diagnosis

Quite simply, when a child is diagnosed with Duchenne, a family’s life is divided into “before” and “after”.

One day, you’re just living your life, trying to figure out what to make for dinner, how to get that super important project done at work, and wondering what your kids will be when they grow up.

And then Duchenne comes in.  For some of us, it’s a slow road to diagnosis, marked by mystery and unexplained symptoms.

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Treatment

Until the recent past, a treatment for Duchenne remained a dream.  On September 19, 2016, the first treatment that could help up to 13% of children with Duchenne, received accelerated approved by the FDA.

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